Sunday, December 14, 2008

Then your light will break forth like the dawn, and your healing will quickly appear; then your righteousness will go before you, and the glory of the Lord will be your rear guard. Isaiah 58:8~
This is the scripture I am claiming this week. By the end of seven days, I will own it, know it, and find peace in it. There are so many wonderful words of encouragement and promise in the book of Isaiah.
I want to start by thanking you all again for your precious friendship, for your emails, phone messages and your love. What treasures you all are to me and my family. It just makes me smile.
Our appointment with Abby's neurologist went as well as could be expected last week. We were all able to discuss things together and that was helpful. But there are no answers... only suggestions to keeping increasing medications. There is a new drug coming out next year that we "may" try. But when 10 others haven't worked, it's not likely that a new one will either.
So we are considering another option. We are going to talk with another doctor in the same practice about the vegal nerve stimulator. It's a device that is implanted into the chest and has a "wire" that runs up the vegal nerve in her neck and stimulates the brain with periodic impulses. It is my HOPE/DESIRE/DREAM that this constant stimulation through out the night as she is in a deep sleep will keep her from having that stinkin seizure as she comes out of sleep. So we are going to discuss this option with the doctor there who does the procedure and see what his thoughts are on the subject.
In the meantime, we struggle to find the balance of researching/fighting/ focusing on Abby's illness with the need to be somewhat "normal" with our lives. So there are appointments to be made, ones to be kept, and ones to be found BUT I am going to get my nails done today. Seems like such a petty little indulgence. But we are going to a little party this afternoon/evening and I want red nails! Ha... just saying it/thinking it out loud seems so petty and delicious at the same time! So after Abby finishes her date with the Grinch, we are off to buy the "Christmas Story" for this evening's entertainment and to get my/our nails painted red!

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Thanks for sharing your thoughts!