One Beautiful Life

Heavy Heart

I write today with the heaviest of heart so far. My precious Abigail Grace slips further and further into sickness each day. Every day, without fail, the seizures are increasing in number with longer lasting side affects. Yesterday she had 13.

Today, she was having trouble walking with her right leg. It took my breath away to see that so soon. I asked her to raise her arms and the left one flew up and the right one continued to hang. Upon repeating my request for the right to be raised, she got it up halfway with much effort.

Moments later she went into another cluster of three seizures, making 9 for the day and it is only 1 p.m.

We have increased Keppra and Topamax as of yesterday. We are eagerly awaiting blood and urine test results from last Monday and PRAY that they will show us SOMETHING. Her neurologist has us coming in on the 30th and I am going to politely request on Monday that we come in sooner... as in early this coming week. I also feel we need a MRI to see if there is anything there.

My heart is desperate. It is torture that I hate to relive to watch her slip further down every day. The helplessness of it all is overwhelming... choking.

We are keeping a journal of her days and everything in them, and I was adding scripture to it this morning and the first passage I looked up was in Mark 9. The disciples had tried to heal a man's son who was possessed with a demon of seizures. They could not do it. Jesus did heal the man. When the discples asked why they could not heal him (as they had healed others), Jesus responded, "This kind can come out by nothing but prayer and fasting." Mark 9:29

I was struck that that was the passage I read first. And so I have decided to fast tomorrow. I am declaring a day of fasting and prayer for Abby tomorrow. Fasting is a very personal thing and so I wil let the Holy Spirit speak to you on that one. But I do ask with a desperate heart that you pray tomorrow for Abby and ask boldly in confidence for her healing. Matthew 21:21

We are opening our home all day for anyone to come and lay hands on her and pray. Since Wednesday, we have had people everyday come and lay hands on her in prayer and I am so thankful and grateful.

God gave us the sweet gift of snow again today. Abby was able to go out for 30 minutes and play in it. She had a seizure just 10 minutes after being back inside. She loved it and was thrilled with the falling of it.

Thank you God for such a sweet sign of your presence today, falling on us sweetly, softly and causing delight.