Abby Grace
Oh I am just overwhelmed with the love I have for this precious child from God. She was such a trooper in the hospital. Our worst day was Sunday as we reached 26 seizures. I found myself going to that survival place of "handle it". Then the Lord shone His Light on us and she was given some relief.
"He will cover you with His feathers and under His wings you will find refuge; His faithfulness will be your shield and rampart. You will not fear the terror of the night, nor the arrow that flies by day..." Psalm 91: 4 & 5
A CAT scan revealed some infection and so we started antibiotics. Her fever she'd had since Saturday started to settle down and she was able to get some more rest. The seizures also started going down in number and we even had a 26 hour period without any.
Don and I had prayed about changing her medication and had decided not to since her seizures were under "control". Since we lost that, we decided to change her to Keppra. So she is going up on that and we are weaning her off the valium she has been on since Sunday while the Topamax stay the same. Once the Keppra is at a good level, we will try and wean her off the Topamax. Our desire and prayer is that one medication will hold her and we won't need her to be on two which is not good for her over time.
She has now been seizure free during waking hours since Tuesday. She is having about two a night but they are smaller than normal and only lasting 5 to 10 seconds. Our prayer is that God will take these away as well and she will again be seizure free.
Her MRI came back normal... PRAISE THE LORD!
"Shout for joy to the Lord, all the earth. Worship the Lord with gladness; come before him with joyful songs. KNOW THAT THE LORD IS GOD. It is He who made us, and we are His; we are His people, the sheep of his pasture. Enter His gates with thanksgiving and His courts with praise; give thanks to Him and praise His name. For the Lord is good and His love endures forever; His faithfulness continues through all generations." Psalm 100
So we are in a holding pattern to see how this week goes. We'll keep you posted. And of course we still covet your prayers!
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