January 30, 2007
Abby continues to get worse each day. Last Friday we went into the neurologist and started the anti-seizure medication, topamax she was on when we started glyconutritionals. Sunday night she had 16 seziures and last night she had 22. Her seizures are starting soon after she goes to sleep now and she is clustering early, last night she had a cluster of 6 by 9:00ish. We gave her the diastat and by 1 a.m. she was seizing again. By 4 a.m. she had clustered again with 6 and so I gave her diastat again and then she was seizing again by 6 a.m. Her speech is starting to slur already and she has been tripping over her right foot all day (the right side is most affected with semi-paralysis after the seizures).
We went to the neurologist again today and are going up on her medication quicker than we initially planned. We are also going to try a new kind of valium tonight that we will give her right before bedtime in hopes that it will keep her from seizing.
Your prayers are covetted. I will continue to give glory to our God and Father who has brought her back from the depths of darkness before and I call on him and beg Him to show His Almighty hand in her life again now. In Jeremiah 29, the Lord declares, " For I know the plans I have for you, plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me and I will listen to you." It is this scripture that I bring before Him and ask you to as well. We are coming to Him and we are praying and we are speaking His word.
"Fear not, for I have redeemed you; I have summoned you by name, you are mine. When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze." Isaiah 43
We are passing through the waters and the river is pulling hard. We are in the fire and the heat is almost unbearable. This is our prayer, that we are reminded daily that He is with us and that Abby is in His hands. That we will not be forsaken, that His adacious power and faithfulness will be seen in her restoration again. Nothing is impossible or too big for our God and we are crying out to see you.
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Thanks for sharing your thoughts!